Principles of Pediatric Palliative Care

Background: In the United States, greater than 40,000 pediatric deaths occur annually (1). Additionally, complex chronic conditions are common, with 15% of children in the US living with one or more chronic health condition (2,3). Many children with life-threatening conditions may have rare conditions that can lead to social isolation and family-life challenges. Palliative care helps […]

Pediatric End of Life Conference

This seminar will be helpful to anyone who cares for those at the end of life. It will be particularly helpful to providers, nurses, social workers, palliative care, hospice staff and volunteers, counselors, clergy, chaplains and lay ministers. If you know others who would find this helpful, encourage them to attend. Register by October 18. Sponsored […]

Seriously Ill Pediatric Patients Who Transition to Adulthood

Background:  Although illnesses such as cystic fibrosis, leukemia, Duchenne muscular dystrophy and congenital heart defects used to be fatal in childhood, recent medical advancements have allowed many with a pediatric illness to live beyond their second decade (1). The goal of this Fast Fact is to identify challenges a young adult (ages 18-25) with a life-limiting […]

Pediatric Pain Assessment Scales

Background     Neonates and infants do experience pain. In fact, research has shown that neonates may experience as much pain as older children and long-term consequences from exposure to repeated painful stimuli.  Untreated pain leads to increased sensitivity to subsequent stimuli.  Assessing pain in neonates and young children requires use of age appropriate scales.  There is […]

New Fast Fact Released: #346 The Transition from Pediatric to Adult Medicine

Fast Fast #346 has been released: The Transition from Pediatric to Adult Medicine. Thank you to Jenna E Frawley, Randy S Hebert MD, MPH for the new addition to our Fast Fact library. Advances in medical care have allowed many pediatric patients with terminal illnesses to survive well beyond their second decade. Consequently, many pediatric […]

Fertility Planning for Patients with Advanced Cancer

Background: An advanced cancer diagnosis at a reproductive age can disrupt expectations of a normal lifecycle and rob patients of the opportunity for parenthood. Cancer often presents with little warning and can compromise reproductive functioning directly or indirectly via treatments. This Fast Fact reviews the psycho-social, logistical, and ethical concerns regarding reproduction for patients facing advanced cancer. […]

Kennedy Terminal Ulcer

What is a Kennedy Terminal Ulcer (KTU)?  The KTU was first coined in 1989 to describe a skin wound that occurs despite best preventative measures and results from the moribund functional status and underlying skin failure associated with the dying process (1).  Timing: KTUs can develop and appear within a matter of hours, in comparison to […]

Nalbuphine

FAST FACTS AND CONCEPTS #381 NALBUPHINE Fay Mathai MD, Frank Portugal DO, and Zankhana Mehta MD, Mellar Davis MD Background:Nalbuphine (Nubain®) is a unique opioid analgesic that was first manufactured in the 1970’s. It is not a controlled substance in the United States as it was removed from the schedule II drug list in 1976 […]

The Role of Cannabidiol (CBD) in Palliative Care

Background   CBD has received public interest as an antidote for pain, epilepsy, anxiety, and nausea (1-4). In the United States (US), there is one FDA approved CBD-based medication – epidiolex – which is indicated for refractory seizures from disorders such as Lennox-Gastaut syndrome and Davet syndrome at a usual dose range of 2.5 to […]

Speciality Certification

Speciality Certification All clinicians working in speciality palliative care should work to become board certified.   Certification is available for physicians, multiple levels of nursing practice, social workers and chaplains.  Click on the icon below for more information.